From the mouths of babes…here is what little Alfie has to say. This was sent to me recently and I have asked Alfie to send me blogs whenever he wants to as a form of a diary, a way to have a voice and to educate others.
So …. Introducing Alfie …
“Autism is hard to live with but it also makes me really happy because it makes me more driven to do things like my art and comedy although it can make me distracted at times ,some people at school don’t understand and make fun of me for it. That is hard to deal with. It can make me really anxious and upset when my brain can’t process things that worry me. It helps me to focus on things that interest me to the point of becoming an obsession. I get nervous about new situations because I don’t know what to expect,e.g will it be noisy,crowded,will I be pushed or touched or if someone has spray-on deodorant and sprays mean I won’t be able to breathe. Will people look at me strangely and will I understand their faces ? Will they like me ?”
My diagnoses: ASD,anxiety/phobia,sensory processing issues, learning difficulties, vocal ticks, fine and gross motor skills problems ,dyslexia, joint hyper mobility,coeliac disease.
Alfie is in mainstream school and the continual fight to be heard and valued in the correct way are never ending.This impacts Alfie dreadfully as well as the whole family . He has periods where he has had to be home schooled when the bullying or lack of academic support has become too overwhelming. However he continues to have his voice through his gifts of art and comedy which help to get him through., just as words,writing and books became my own son’s world.
I wish blogs like this could be given as a mandatory part of teacher training.
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