Oh wow… I don’t know where to begin.
This whole week has been like walking through a dream. Nothing feels real …
Please, please don’t think I am boasting or showing off in any way because that’s not who I am . I’m just all about family and the beautiful, awesome kids and young adults I devote my life to.
For the first time in my entire adult life I feel seen and I’ve just cried bucket loads …it is such a strange and unbelievably gorgeous feeling.
I see so , SO much in others and do this work with all my heart and soul, just wanting to make a difference for children who have such difficulty in being seen, heard, having a value or belonging .
I’VE BEEN SHORTLISTED FOR THE NATIONAL DIVERSITY AWARDS 2021 !!!!!!!!!!!!!!!!!!!!
Thank you, thank you, THANK YOU to all of you who voted for me and believe in that I do.
Thank you to all of you who have been milestones on my journey and to those of you who walked beside me when I jumped off that cliff with nothing but faith , terror , desperation, a bit of tenacity and £50 in my pocket.
My heart could burst with gratitude !
Thank you ALWAYS to Tess Eagle Swan for so kindly nominating me in the first place. Her own work with her incredible therapy dog, Kratu, is phenomenal , as is her amazing journey.
By nominating me, Tess has changed my life. My soul feels like it has somehow shifted. I have been invisible for over two decades and she has changed that : I feel a little bit worthy – and worthwhile – for the first time.
Out of over 50,000 nominees ….how ?!?
I had to call the National Diversity Awards because I was so worried there had been a mistake and I didn’t want to post anything until I was absolutely sure.
All I hope is that this gives me a greater platform from which to fight for all these children.
I feel like a Mum to millions !!!
After my long, long and extraordinary journey, this feels beyond belief …
Click on the link below to see the shortlist, read about some truly inspirational people and to book tickets for the event which will be held at the Anglican Cathedral, Liverpool on 4th February 2022.
I was so overjoyed to be invited by magazine publisher Amy KD Tobik , an award winning magazine editor, with more than thirty years of publishing experience and Editor-In Chief of “Exceptional Needs Today” , to write an article about the neurological power of touch for her November 2021 issue.
After successfully producing an autism magazine for more than six years, Amy branched out to create “Exceptional Needs Today”, a publication that supports families at no cost to them.
“Exceptional Needs Today” is an innovative magazine designed to support ALL individuals in the special needs community. The publication focuses on educating and energising (two of my absolute favourite words !!) families, caregivers, educators and professionals while preparing a healthy path for the future.
Topics covered are managing diagnoses, mobility and accessibility, personal rights, educational rights, occupational therapy, resources, schools and camps, transitioning into adulthood, job opportunities, financial planning, supporting families and carers and so much more .
I will post the link and front cover once it is published in the November issue. But in the meantime check out Amy’s fantastic work!
I was really delighted to have been invited for an interview with Maisie Moore of the Autism & Us Podcast just before lockdown.
The episode is all about “Love and Hope” . I had no idea of the questions that Maisie would ask me – which I absolutely love and prefer because it’s so much more natural and cosy !It’s the first interview I’ve ever had where I was asked about my own life from childhood onwards. So much was revealed to me during that discussion, perhaps because I spend so much of my time in the layers of so many other people’s lives ! My own neurodiversity was unpeeled whilst I recognised and acknowledged so much that has happened in my own rather extraordinary life. The roots of why I do my work and why I have such tremendous passion for it, such a diving force of absolute belief, became evident to me as Maisie asked her questions.
I also discussed my journey with my autistic son , from birth right up to today, which was quite tough and emotional but also incredibly uplifting as I recalled those chapters. I am even more full of admiration for my son than ever before ! I talked about his severe bullying, the continual fight, my unswerving belief and the incredible support of my other three children.
Some listeners may find parts of my interview upsetting or triggering as I also openly spoke about the domestic abuse we all as a family endured, the continual background of fear , manipulation, cruelty, neglect, abandonment and violence in a home that had also been filled with spyware and cameras.
It was completely gorgeous to chat with Maisie about the passionate work and advocacy I do now.
I realised as we chatted that it is almost as if I was born to do this work ; that my life cards, although hard at times , were all building blocks, steps on a pathway, chapters to be walked through and learned from , so that I could have the heart wisdom as well as the cognitive knowledge to help those who don’t have a voice today.
This is work I will never retire from, work I shall never stop doing until laws change, attitudes change and real education about neurodiversity happens.
I’ve got all the energy in the world !!!
Thank you Maisie for inviting me, for your amazing and insightful questions , and for all the wonderful work that you do.
You are one incredible lady and powerful advocate for autism .
Please click on the link below to hear the interview.
Really super chuffed to have been part of Dr Susanna Pinkus’ June 2021 published articles.
EMRACE YOUR DAILY D.O.S.E. is the title of my (very excitable article !) a proven neuroscientific piece about the power of touch, yoga, meditation and mindfulness and how we can literally take control over our own grey matter and neurological pathways, (neuroplasticity) .
I am absolutely passionate beyond ALL measure about this and seem to fill with more awe and wonder the more I learn about the body and brain !
I am addicted !!
I love sharing this knowledge and seeing the empowerment it immediately brings to all those with whom I work.
So it was a joy to me to share with someone as esteemed as Dr Pinkus.
We have followed each other’s work for years on LinkedIn, sharing a mutual huge respect, and having very similar approaches, so this has been a wonderful collaboration.
The Dr Susanna Pinkus’ articles ” span a wide range of topics, from how to navigate The Education Health Care Plan (EHCP) process, to how to build your online inclusion network, managing transitions …With top tips on how to enable inclusive practice, and more than a little help from colleagues, I hope that a sense of purpose and passion shine through. ”
To read the article please click on the link below.
What an absolutely gorgeous and phenomenal surprise to wake up this morning to the incredible and overwhelming news that I had been nominated for a Positive Role Model award at the extremely prestigious National Diversity Awards !! I don’t think I’ll ever sleep again I’m so excited !! Wow Wow Wow ….I never dreamed that anything like this could ever happen to someone like me !
Some truly inspiring and motivational people have been nominated for various awards. It’s a very humbling and amazing read. Even if I do not win, I am just so honoured to have had my name alongside theirs. Every nominee is a winner to me . What remarkable journeys and people ! I want to vote for them all !
I cannot believe that my work, message and journey have been given such value and such recognition.
I am utterly blown away and just so full of gratitude.
For so many years 18 or 19 hour days have become the norm , so much of it unpaid, as I continually campaign and fight for all the hundreds and thousands of young people just like my own autistic son. His journey birthed this work and my destiny as I grew to realise that so,so many children were suffering and being surrounded by a total poverty of expectation, just as he was. I would go to the ends of the Earth ( and have done at times!) for them and I will do this work until the end of my life . These incredible voices need to be heard. These neurodiverse children have so much to teach us and so much to contribute to our changing world.
If you think that what I do is of value and you would like to vote for me, I would be endlessly thankful ! Let’s hear it for the kids !!! And if I win then I will have a bigger platform fro which to get these hugely valid and important voices heard. Neurodiverse children become neurodiverse adults .. and they have SO MUCH potential !
So please vote for me and spread the word.
Thank you !!
Please click on the link below to vote in this year’s National Diversity Awards 2021
On May 6th 2021 it will be absolutely wonderful to join Anna Kennedy OBE and Kacey Ainsworth, actress and patron of Anna Kennedy Online charity, for an interview with Aston Avery, a fellow Charity Ambassador, at Gateway Radio 97.8 FM at 12 midday.
We will be discussing and raising awareness about the exciting re-vamp and Re-Launch of Take 5, the Charity’s Mental Health and Wellbeing Campaign which Anna asked me to undertake when she invited me to become the Wellbeing Ambassador. I have embraced this with immense passion and enthusiasm !
It was just so lovely when Anna Kennedy OBE sent me a copy of this article featuring her announcement of me as the Wellbeing Ambassador for her fabulous charity AnnaKennedyOnline.
I’m truly just SO proud, excited, humbled & wanting to do and learn more and more !! It’s gorgeous to be part of the AKO Family.
Please click on the link below to see the article .
Really delighted to be invited back again onto the Bryan Leaker radio show at www.westsomersetradio.co.uk where I talk about all my extensive freely shared therapy work throughout Covid and the launch of my new free online magazine Rainbow Kids Touch Therapy and Relaxation on 21st March 2021 !!!
The first airing of the interview will be on Tuesday 16 February and the second airing will be just after 3.30pm on Monday 22 February. Bryan deserves a medal for all the headaches I give him during interviews !! Another MBE for him perhaps ??! ……
I could actually spontaneously combust with the news that a dream come true for me is about to happen ! With the invaluable help and technical knowledge of my co-editor in chief ( !!! ) Millie Cooper, Rainbow Kids Touch Therapy Online Magazine is going to be launched Spring 2021!!!! I have a special birthday during this time and to mark this milestone, this is my gift, in some small way ,to the global community we have all become during these scary and challenging times.
It will be a banging first issue too !! We will be leaping into Spring with an interview with Anna Kennedy OBE , articles by Mary Atkinson, founder of StoryMassage, Jyoti Jo Manuel, founder of Special Yoga, the story of Kratu the famous therapy dog and how he met his “muvver”, the inspirational and extraordinary Tess, along with articles about Kratu’s work with autism and mental health.
There are real life motivational stories and journeys too of young people who were totally written off and yet have gone on to bust all the myths and achieve the most tremendous things.
In this issue we hear about a young man named Michael who is profoundly deaf , his heartbreaking but triumphant story, and who has gone on to read a degree, live abroad and will begin work later this year for a top investment bank !!
Sadly even at university level his parents were fighting a system that falls far short of being educated or inclusive of those with neurodiversities.
But triumph has overcome everything …I love it !!
We need real and achievable hope, advice and light in the face of the constant stream of negativity from the Press and all over social media.
Not that we are glossing over anything by any means.
Mental health especially amongst our young people has hit global crisis levels and the suicide rate continues to soar. So in this magazine there is lots of advice, neuroscientifically backed and proven therapies, techniques and tools whether you are self isolating alone or within a bubble, whether you are disabled, differently-abled, neurodiverse or neurotypical, in a wheelchair or a hospital.
IT IS INCLUSIVE OF EVERYONE regardless of budget or situation.
It is for individuals of all ages , families , therapists , teachers and other professionals .
It is for the unemployed, those on furlough and those still working, especially if they are in the “front line’ as key workers.
There is something for everyone and every need.
There are even ready to go yoga stories, story massage stories, positive growth mindset games and exploring feelings games which are very bonding and often very funny.
The touch therapies I myself have included can be self administered or shared in your “bubbles” …. Touch boosts immunity !! We need it more than ever.
We ARE in this together and I hope with all my heart that there will be something for everyone within these pages of a very special , unique and much needed magazine . It will come out quarterly for just £2.99 so it is affordable to everyone but covers my magazine platform costs.
So watch this space !!
Lots of love,
Millie and Giuliana !
MASSIVELY EXCITINGLY I was invited by presenter Andra Iuliana Stanoiu to be interviewed for her entire show to celebrate International Day Of People With Disabilities on 3 December 2020!
Her international listeners are in the millions and millions so I wanted to value this absolutely unbelievable opportunity to shout from the rooftops about the need to get our special children seen, heard, valued and included… to give as much of a voice as I possibly, possibly could to this hugely important and significant part of our rich global community.
At the end of the show I was almost in tears when Andra asked me back for a SECOND interview for her next episode…thus making December on The Healthy Debate Show all about “Special Needs”. Andra was probably close to tears too… with a gigantic migraine! I did talk… and then some !I am just so dedicated and determined both personally and professionally to try to give a voice to all those millions across the world who don’t have one.
Thank you, thank you Andra for inviting me to such a truly awesome show!
I will be appearing on it again a few months into 2021 too! Details to follow nearer the time…
The link to the first show is enclosed below and will air from Tuesday 8 December 2-3pm British time and daily for a whole fortnight INTERNATIONALLY! Wow!
Please use the player below to listen to the broadcast.
For more information, please visit the UK Health Radio’s website here.
The next show will be aired in two weeks time and again I will add the link .